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In 1997, the founders and organizers of the first IDMC meeting stated:
Five years have elapsed since the discovery of this strange mutation responsible for myotonic dystrophy. The list of new diseases associated with this type of mutation continues to increase…Despite of the tremendous accumulation of data, the molecular mechanisms underlying the physiopathogenesis of DM remain the most enigmatic… Claudine Junien and Tee Ashizawa , IDMC1, Paris 1997.
Indeed, not much was known about the consequences of the DM1 mutation. In order to accelerate clinical and fundamental research, towards the development of new therapeutic strategies, the international DM consortium meeting was created to bring together not only scientists and clinicians but also associations and patients themselves. The first IDMC meeting, IDMC1, was organized in Paris with the substantial help of AFM (Association Française contre les Myopathies) and MDA (Muscular Dystrophy Association).
If we look back over the past 18 years, see IDMC1 program in this book, tremendous progress has been reached not only in DM1 but also in DM2 (previously known as PROMM). Through the regular IDMC meetings that were held in various parts of the world every 2 years (Paris, 1997, France; Raleigh, 1999, USA; Kyoto, 2001, Japan; Glasgow, 2003, UK; Québec, 2005, Canada; Milan, 2007, Italy; Wurzburg, 2009, Germany; Clearwater, 2011, USA; San Sebastian, 2013, Spain) fruitful international collaborations have been established. Furthermore, new active patient associations as well as, more recently, pharmaceutical companies have joined in the effort to fight against DM. The DM community and its spirit are unique and has considerably grown over the years. Time comes now for the development of innovative therapeutic strategies, while the knowledge on various aspects of DM (biological, clinical, and psycho-social) is still progressing.
For its 10th edition the IDMC meeting has returned to Paris where it started. While about 80 participants attended to IDMC-1, up to 3 times more attendees are participating in this new edition, demonstrating new challenges and the growing forces devoted to unravel disease mechanisms, to ameliorate DM patients’ life and to finally cure the disease.
We are pleased to welcome you all in Paris and we hope that IDMC10 will fill your expectations,
Geneviève Gourdon & Guillaume Bassez
Co-Chairs, IDMC-10 Organizing Committee